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Visions for Tomorrow - Free Class through NAMI Black Hawk County

A free eight-week class for family members and caregivers of children and adolescents who have brain disorders, including ADD/ADHD, Autism, Bipolar Disorder, Depression, Obsessive-Compulsive Disorder, and Tourette’s.  Teachers are trained through NAMI Iowa, the state office.  The course offers an opportunity to share mutual experiences and learn valuable lessons from other participants in a supportive environment.  The class covers a variety of educational material and provides ideas for day-to-day caregiving skills.  Topics include accessing school services, advocacy, coping and communication, IDEA, problem management, self-care, and the recovery cycle.

NAMI Black Hawk County will offer the class every Thursday from September 22 to November 10, 2011.  It will be from 6:30 p.m. to 8:30 p.m. in the lower level at the First Congregational Church, 608 West 4th Street, in Waterloo.

Registration is required for the class.  A stipend of up to $75 per family is available through the state office to help a family who needs to cover the cost of a childcare provider.  If you have questions, need more information, or would like to register, please contact Leslie Cohn at NAMI Black Hawk County, 319-235-5263 or by email at namibh@qwestoffice.net.

 

Wretches & Jabberers - Movie at College Square, Cedar Falls
The  film  "Wretches  and Jabberers" is  coming to the College Square Theater  in Cedar Falls May 12th  at 7:30pm! This is  a  film about two men with Autism who type to communicate. It is directed  by Gerardine  Wurzburg who directed "Autism  is a World".  To learn  more go to www.wretchesandjabberers.com. Please plan on attending and bring  a friend. You won 't  regret it!  Inclusion Connection is the host  and our goal is to pack the house with  at least 100 people. Please RSVP to Jean Trainor at jtrainor@mchsi.com  

PBS series about autism . . .this has excellent information!

DHS Proposed Changes to Waiver Programs
DHS is proposing an amendment to Remedial Services that would allow for social skill teaching, independent skill-building and family training to be covered under Medicaid and Waiver services.  The link to the document is below:

http://www.legis.iowa.gov/DOCS/ACO/IAC/LINC/ARC.9399B.pdf

DHS is requesting comments on or before March 16th.  The information on sending comments is below:

Any interested person may make written comments on the proposed amendments on or before March 16, 2011. Comments should be directed to Mary Ellen Imlau, Bureau of Policy Coordination, Department of Human Services, Hoover State Office Building, 1305 East Walnut Street, Des Moines, Iowa 50319-0114. Comments may be sent by fax to (515)281-4980 or by E-mail to policyanalysis@dhs.state.ia.us.

The Department will also hold a public hearing for the purpose of receiving comments on the proposed amendments on Wednesday, March 16, 2011, from 10:30 a.m. to 12 noon in the First Floor Southeast Conference Room 1, Hoover State Office Building, 1305 East Walnut Street, Des Moines, Iowa.

This is an amazing opportunity to focus the teaching and social skill needs that individuals with ASD have.  Behavior services have never been covered in the past, so this is a major change.  We REALLY need to get people to send input that supports this change.

Alyson Beytien
beytien@mchsi.com
 read more ...

January Announcements

AEA 267 Autism Team Free Training for Parents

The AEA 267 Autism Team is offering a training strand that starts this TUESDAY :  Instructional Strategies for Teaching Students with Autism and Other Developmental Disorders.  These will be held at RIVER HILLS SCHOOL, at 2700 Grand Blvd. in Cedar Falls.  Directions can be obtained by following this link:  http://riverhills.aea267.iowapages.org/id7.html.  Each session is a different topic. 

 
Parents may attend and there is no cost.   Please email Jim Stoycheff (jstoycheff@aea267.k12.ia.us) if planning to attend so we may have sufficient materials available.
 
Section times for Cedar Falls Spring 11
1.      01/18/2011      04:30:00 PM     -       07:30:00 PM   Characteristics of Autism and Overview of Structured Teaching
2.      02/01/2011      04:30:00 PM     -       07:30:00 PM  AAC/ Communication
3.      02/17/2011      04:30:00 PM     -       07:30:00 PM  Social Skills
4.      03/01/2011      04:30:00 PM     -       07:30:00 PM  Positive Behavior Supports
5.      03/08/2011      04:30:00 PM     -       07:30:00 PM  Applied Behavior Analysis in the Classroom



 

 

Autism Friendly Movie - Sumner Sunset Theatre

The Sunset Theatre will host a free Autism-friendly showing of "Toy Story 3" at 10 am on Saturday January 15th.
Children affected by autism and other disabilities and their families are invited to this special showing in a safe, accepting environment.
  • Lights will be brought up
  • Sound will be turned down
  • Families may bring gluten-free, casein-free snacks
  • No previews or advertisements will be shown
  • Audience members are welcome to get up and dance, walk, shout, or sing.
Who May Benefit:
  • Children with an Autism Spectrum Disorder Diagnosis and their families. 
  • Children with other special needs who may benefit from the modified environment and their families are welcome to attend as well. Children must be accompanied by an adult.
No admission will be charged!
Matt Cahoy, manager
Sumner Sunset Theatre
www.sumnersunsettheatre.com
(563)578-5307 


ASPIRE Therapeutic Horseback Riding Program 

ASPIRE Therapeutic Riding Program is a non-profit organization that specializes in offering unique therapy through through various horseback riding techniques to individuals with disabilities.

Spring classes start in April.  If you are interesting in learning more go to their website at http://www.aspiretrp.org.
 

B-Calm device finding uses for autistic children
Here is an article from the Waterloo Courier about something called B-Calm device.  read more ...

Autism Society of Iowa Networking event

There will be a "regional" family networking picnic at Lookout Park's Shelter, Cedar Falls, on Sunday, October 3rd from 4:30 to 6:30 pm. 

ASI is supplying chicken, and it's otherwise potluck; bring a dish to share and your own table service. 

RSVP: Please contact Suzanne Bartlett at sbartlett@cfu.net or Kris Steinmetz at autism50ia@aol.com or 515-327-9075.

Lookout Park is located near Park and Mandalay Drive in Cedar Falls.

 

Reel Movies for Real NeedsReel Movies for Real Needs
Click on the link below to learn more about this program!  read more ...

Autism Society of Iowa - Fall Conference: Temple Grandin, Ph.D. - Keynote Speaker

Autism Society of Iowa Chapter
Fall Conference: Temple Grandin, Ph.D. - Keynote Speaker


Date:  Nov 19, 2010

Start Time:  Registration begins at 7:00 am, Conference begins at 8:00 am.

End Time: 3:15 pm

Location:  Sheraton Hotel of West Des Moines

Contact:  Autism Society of Iowa
                515-327-9075, 1-888-722-4799
                autism50ia@aol.com

Registration link below:

 read more ...

Music for Early Autism Class
Music for Early Autism
Tuesdays 9:30 - 10:00 a.m.
Starting in September, 2010

Click here for the registration form.

See the attachment for more details!
 read more ...

Sumner Sunset Theater - Free movies for families with special needs child
Sumner Sunset Theater is going to start offering (free) movies for families with special needs children. They will be leaving lights up, turning down the volume, and will not have any commercials or previews prior to the movie. They will also have GF/CF snacks available.

If you or anyone has any questions, they can contact Trista Calonder at scalonder@iowatelecom.net or 319-404-7647.
 

The right note: Music a key connector for autistic kids

Class registration

Another Music for Early Autism class will be offered in September. The program is geared toward children ages 2 to 5, with the optimal sessions including 3 to 5 students. For more information about the class, please contact music therapist Lucy Schipper at 277-1000 ext. 4125 or lschipper@westmusic.com.

 read more ...

Fall 2010 Autism Research Institute/Defeat Autism Now! Conference

Fall 2010

Autism Research Institute/Defeat Autism Now! Conference

Long Beach, CA

October 7-10

Sessions are $69/day for parents and caregivers.

Complete info including speakers, schedules, rates, online registration, printable registration forms and discounted hotel rooms available at www.defeatautismnow.com

Email
: ARI-LB@Autism.com

additional assistance: 1-877-644-1184 (toll-free)

 read more ...

Media release/Mercy Autism Center
Mercy Medical Center in Dubuque is announcing plans for the Mercy Autism Center, which will open in July.  read more ...

Reel movies for Real needs at College Square Mall
We recently learned that College Square Mall plays a movie once a month on Saturday Morning for Sensitive kids. It is Reel movies for Real needs. The next movie is May 22 at 10:30 they will be playing Shrek the Final Chapter.  They leave the lights up and turn the volumn down.  I just wanted to pass this along and if you know of anyone else that has childen who don't like the loud, dark movie theater they might enjoy this.  

On Line Autism Social Skills Training
Some information about On Line Autism Social Skills Training website.

 read more ...

Living, Learning and Understanding Autism and ADHD Conference
Autism and ADHD Conference

Where: Hy-Vee Hall - Des Moines, IA
Date:   May 6, 2010
Time:   9:00 a.m. - 4:30 p.m.

Info:  Go online at www.autismchamps.org to register and see more information.  RSVP by April 29 to receive a discount.
 read more ...

Updated Resource List 2010
This resource list is courtesy of Karn Johansen.  Thanks to her for sharing!

 read more ...

Hog Roast - Autism - Osage, Iowa - 3/27/10

WHAT: Autism Hog Roast

COST: $5.00

WHEN: Saturday March 27, 2010

WHERE: KC Hall Osage, IA
(Knights of Columbus Hall,  1403  State Street, Osage;  641-732-5453)

TIME: 5:30-10:00PM

MAGIC SHOW:    "MR K"  AT 7:00PM

DJ " THE MAIN EVENT" following the Magic Show

 

Any questions? Contact danjaci@mchsi.com

 

IHCC Spring Mental Health Conference with Dr. Chris Okisshi, April 30th, 2010
Here is a conference in Ottumwa on April 30th.  Links below are of flyers regarding this conference.

 read more ...

HBO movie about Temple Grandin

Premiers on HBO on February 6th.

 

Online portal helps children with autism

A series of free online computer games designed for children with autism has been created by a group of final year multimedia students from Swinburne University, in collaboration with Bulleen Heights Autism School and the National eTherapy Centre.

The games portal can be accessed at: www.whizkidgames.com The site for parents and teachers can be accessed at www.autismgames.com.au

WhizKid Games is an online portal that aims to help autistic children develop their independent living skills, focusing on areas such as coping with change, recognising emotions and non-verbal communication.

It includes 16 therapeutic games themed around everyday activities such as getting dressed, going to school and following a schedule.

In developing WhizKid Games, students were given expert advice by researchers from the Swinburne Autism Bio-Research Initiative (SABRI) and teachers from Bulleen Heights Autism School.

According to SABRI director, Associate Professor David Austin, the games will provide a real benefit for children with moderate to severe autism.

“Autistic children can be difficult to engage in traditional educational settings, but most autistic children are very happy to work with a computer. The idea is to capitalise on that and have autism-specific computer-based activities that work for them in building their skills,” he said.

In addition to the WhizKid portal, the Swinburne students created an accompanying site for parents and teachers of autistic children.

“This portal allows parents and teachers to learn more about the theory behind each game, and how the goals of the games can be supported at home and in school environments,” Austin said.

WhizKid Games, which was created by 80 final year multimedia design students, represents over 16,000 hours of research and development.

The site will be officially launched on Tuesday December 8 by the CEO of Autism Victoria, Murray Dawson Smith.

The games portal can be accessed at: www.whizkidgames.com The site for parents and teachers can be accessed at www.autismgames.com.au

 read more ...

Teaching the ABC's of crucial social skills
A good article from the Washington Post.  read more ...

NOVA Science Now - Autism Genes
NOVA Science Now - Autism Genes

Researchers have begun to zero in on genes that might be responsible for autism.

 read more ...

NY Times Article: A Vanishing Diagnosis for Asperger's Syndrome

Apply for a Waiver Today!
If you are considering applying for a waiver for your child -- to get respite and Title XIX, etc -- do not hesitate. Do it now and contact your county DHS office to begin.

My DHS contact has told me that due to upcoming budget cuts, it is imperative to start this process now. Waiting lists may be a certainty after money is slashed from the budget.  

Parents as Presenters - parents needed

Dr. Donna Raschke, in continuing to support the importance of educators hearing from families, will be hosting a family panel at UNI in Schindler Education Center Room 182-183 on Saturday Nov. 14, 2009 from 2:00-3:00 PM.  Speakers will receive a $35 honorarium and if you need extra support for gas, just let me know!

She will need 3 families represented again this year, each “family” sharing their early childhood story for about 20 minutes. 

If you could share this with families or just reply to this email with your interest and availability, I will put together a panel that offers diversity in experiences and confirm the panel with everyone prior to the date.  Thank you! Gina

Gina S. Greene
Early ACCESS Region 7
3675 University Ave. Waterloo, IA 50701
Phone: 319-833-0064 or 1-800-475-0804
Fax: 319-274-8841
gina.greene@episervice.org
www.EarlyACCESSIowa.org

 

Higher autism rates detected: Now 1 in 100 kids

CHICAGO - Two new government studies indicate about 1 in 100 children have autism disorders — higher than a previous U.S. estimate of 1 in 150.

Greater awareness, broader definitions and spotting autism in younger children may explain some of the increase, federal health officials said.

"The concern here is that buried in these numbers is a true increase," said Dr. Thomas Insel, director of the National Institute of Mental Health. "We're going to have to think very hard about what we're going to do for the 1 in 100."

Click here to read more: http://www.msnbc.msn.com/id/33165127/ns/health-mental_health/

 

Autistic player's dream comes true as he scores his first touchdown
Very excellent story.  A must read!  read more ...

Autism Society of Iowa Fall Conference
The Autism Society of Iowa Fall Conference will be held Friday, September 25th in West Des Moines.
 read more ...

"Truth Be Told" on TLC - September 16
"Truth Be Told" is a 1-hour program that will air on TLC, September 16th from 8-9 pm. The show will feature the daily lives of families who have children with autism, Down Syndrome, and epidermolysis bullosa. Check it out!  

Circle of Care Conference - Sept 26 in Cedar Rapids
Circle of Care Conference - September 26 in Cedar Rapids

Kirkwood Center for Continuing Education

7725 Kirkwood Blvd SW

Cedar Rapids, IA 52404

 

 read more ...

Midwest Autism Conference
Join us as we explore the learning and loving strategies that unlock the potential of children and youth with autism spectrum disorders. Discover the best practices for educators, therapists, and families in school, home, and community environments. Learn the practical applications, encouraging trends, and the developing resources available those who work (and live) with autism. Parents, guardians, and caregivers are welcome and encouraged to attend.  read more ...

Camp Be A Friend helping autistic children
For eight weeks every summer, Camp Albrecht Acres near Dubuque, plays host to campers with disabilities; giving them a chance to experience sleep away camp. But this summer, after eight weeks, Camp Be A Friend took over. This 2 week day-camp for autistic children is the first of it's kind.  read more ...

Autistic Teen Finds Inner Voice – New video taken from 20/20 after the broadcast
Carly's Voice - click below to view more.  read more ...

Autism Training: Inclusion and Behavior in Autism Spectrum Disorders
Inclusion and Behavior in Autism Spectrum Disorders
December 3-4, 2009
Cedar Rapids, Iowa
 read more ...

Autism Training: Autism Across the Spectrum
Autism Across the Spectrum
November 5 - 6, 2009
Clear Lake, Iowa
 read more ...

Defeat Autism Now Regional Conference in St. Paul, Sept 12-13
Defeat Autism Now!
Regional Conference
St. Paul, Minnesota
Sept 12-13
 read more ...

Autism Treatment Acceleration Act of 2009 - Federal Autism Insurance Reform (S. 819, H.R. 2413)

Follow the link below for information on this new bill and how to support the bill.
 read more ...

June 2nd Support Group Meeting Canceled
The Autism Support Group meeting for Tuesday, June 2nd has been canceled.  Stay tuned for updates on future meetings.

Thanks!
Chris & Tyann Rouw  

Trusera Autism website
Moms on Trusera know what it’s like to have a child with autism.  That’s why they’re here, and why they want you to take part.  This is a place where you will take control of your child’s health, gain confidence (or give it!) and maybe even get inspired to take action.  Either way, Trusera has thousands of parents coping to various degrees who share daily doses of empowerment and insight.  read more ...

A Genetic Clue to Why Autism Affects Boys More
Among the many mysteries that befuddle autism researchers: why the disorder affects boys four times more often than girls. But in new findings reported online today by the journal Molecular Psychiatry, researchers say they have found a genetic clue that may help explain the disparity.  read more ...

Six Tips for Traveling with an Autistic Child
Some tips for people planning or thinking about vacations this summer.  read more ...

The Judgement on Vaccines is In?
Here is an article written by actor Jim Carrey.  read more ...

McKenna McNelly Photography for Special Needs Individuals
McKenna McNelly Photography, Waterloo, Iowa

Photographer with several years of working with special needs individuals.

For more information go to www.mckennamcnelly.com or contact Crystal or Sarah at 319-234-4617.
 read more ...

Autism Pens now available

Laverne "Sid" Sidler is making pens with puzzle pieces for sale to help promote autism awareness.  Read on for more details.

 read more ...

April 2009 Meeting
Guest speakers: Craig and Alyson Beytien

Topic: Get it Together!:  Maintaining a Marriage Relationship in a Family with Autism
 

When: Thursday, April 9th at 7:00 p.m.

Where:  AEA 267 Conference Center

3712 Cedar Heights Drive, Cedar Falls (the newer brick building)

Rooms A & B
 read more ...

Thai "Spiderman" Rescues Boy with Autism

BANGKOK (AFP) – A Thai fireman turned superhero when he dressed up as comic-book character Spider-Man to coax a frightened eight-year-old from a balcony, police said Tuesday.

Teachers at a special needs school in Bangkok alerted authorities on Monday when an autistic pupil, scared of attending his first day at school, sat out on the third-floor ledge and refused to come inside, a police sergeant told AFP.

Despite teachers' efforts to beckon the boy inside, he refused to budge until his mother mentioned her son's love of superheroes, prompting fireman Sonchai Yoosabai to take a novel approach to the problem.

The rescuer dashed back to his fire station and made a quick change into a Spider-Man costume before returning to the boy, he said.

"I told him Spider-Man is here to rescue you, no monsters are going to attack you and I told him to walk slowly towards me as running could be dangerous," Somchai told local television.

The young boy immediately stood up and walked into his rescuer's arms, police said.

Somchai said he keeps the Spider-Man costume and an outfit of Japanese television character Ultraman at the station in order to liven up school fire drills.

 

 

Autism Conference - Decorah, Iowa
The Spectrum Network will host a conference for nurses, social workers, teachers and families to learn about interventions and strategies for individuals with autism spectrum disorder (ASD) and Asperger Syndrome.

Author Kari Dunn Buron of Hamline University in St. Paul, Minnesota, will discuss social cognition, learning theories and Asperger Syndrome. Professor Jan Greenberg of the University of Wisconsin will present findings of a longitudinal study that examines the lives of adolescents and adults with ASD, and challenges for their families. Behavior analyst Evelyn Horton, the directore of youth community services at The Homestead in Des Moines, will lead sessions on understanding autism to develop meaningful interactions.

The workshop will be held from 9:00 a.m. to 4:30 p.m. at Hotel Winneshiek in Decorah on April 9. There will also be exhibits available from service and educational providers.

Cost of the full-day conference and lunch is $40, with continuing education credits available. For registration information, call NICC at 1-800-728-2256, extension 399.

 

Children-At-Home Program has funding!

Currently, the Black Hawk fund still has a balance of $8,000.00 and the Grundy fund still has a balance of $7,500.00.  This money needs to be spent by June 30, 2009.  Read on for details on how to apply.

 read more ...

Autism Insurance Bill Update
The Autism Insurance Bill doesn't look to make it out of funnel this year.  Read on for details.  read more ...

Ban Mercury in Flu Vaccines

Hi Everyone – please forward far and wide to anyone you think would be willing to call the Capitol and/or email legislators listed below.  As always, please remember to be polite and respectful, but very firm in your assertion that this bill needs a fair chance to be heard!  We have volunteered to bring in an expert in mercury toxicity for a hearing before the FULL committee, if we can just get past Rep. Wendt and the subcommittee (Wendt, Koester and Steckman) – see info below on why it is being held up.  Thanks – Dana Halvorson

 

 read more ...

Autism Society of Iowa Spring Conference
Friday, April 17, 2009
Sheraton Hotel
West Des Moines, Iowa

Speaker: Jed Baker, Ph.D.

If you have questions or need more information, please call 515-327-9075 or 1-888-722-4799.

You can also find info online: www.autismia.org or by emailing autism50ia@aol.com

 

Help Get the Autism Insurance Reform Bill Passed in Iowa
Click on the link below to learn more.  read more ...

Autism Walk 2009
East Central Iowa Chapter of Autism Society of American presents

Autism Walk 2009

Saturday, March 28, 2009
8:30 a.m. - 11:00 a.m.
Westdale Mall, Cedar Rapids
 read more ...

Visions for Tomorrow - Free Class through NAMI Black Hawk County

 A free eight-week class for family members and direct primary caregivers of children and adolescents who have brain disorders, including ADD/ADHD, Autism, Bipolar, Depression, Obsessive-Compulsive Disorder, and Tourette’s.  Teachers are family members trained through NAMI Iowa, the state office.  The course offers an opportunity to share mutual experiences and learn valuable lessons from one another in a supportive environment.  The class covers a variety of educational material and provides ideas for day-to-day caregiving skills.  Topics include accessing school services, IDEA, communication, problem management, coping, self-care, the recovery cycle, and advocacy.

 

NAMI Black Hawk County will offer the class every Thursday from April 2 to May 21, 2009.  It will be from 6 p.m. to 8 p.m. in the second floor classroom at the First Congregational Church, 608 West 4th Street, in Waterloo.

 

Registration is required for the class.  A stipend of up to $75 per family is available through the state office if you need to cover the cost of a childcare provider.  If you have questions, need more information, or would like to register, please contact Leslie Cohn at NAMI Black Hawk County, 319-235-5263 or by email at namibh@qwestoffice.net.

 

Health Insurance Coverage for Children with Autism Spectrum Disorders

Immediate Action Needed!

The Iowa House of Representatives is getting ready to debate whether insurance plans should have to pay for the treatment of mental illness and substance abuse in the same way they do for other illnesses.  In other words, House File 139 would guarantee mental illness is treated equally.

Legislators are getting flooded with calls from businesses and insurance companies opposed to the bill - but are simply not hearing from those who would benefit from coverage and advocates who support the bill. 
We need your help - or the bill will not be debated this year.

If you want all illnesses, whether physical or mental, to be treated the same, contact your State Representative before Wednesday, February 11. 

1. Call or Email your State Representative and tell them you support House File 139.  Talking points from the Parity Coalition are attached if you need help - but your story and why this is important to you is what legislators want to hear!

           To Call:      515-281-3221            To Email:    www.legis.state.ia.us/aspx/Legislators/HouseEmail.aspx

2. Attend one of the local forums this weekend and voice your support. 
This weekend's forums are listed on the last page, and are available online at: www.infonetiowa.com/advocate/local_forums.php..

3. If you have time, let us know what your State Representative says to you.  The coalition working on this will want to follow-up with your legislator at the Capitol.  Contact us at: infonetiowa@gmail.com or 866-432-2846.

At this time, you only need to call your State Representative.  Forward this email to as many people that you know and ask them to email or call their legislators in support of HF 139!

 

DVD Helps Kids With Autism Read Faces, Emotions
British researchers have found a way to use the fascination many autistic children have with trucks and trains to teach them about human emotions.  read more ...

New White House website - Autism

Here is an excerpt for the White House’s new website on autism: 

Autism

President Obama and Vice President Biden are committed to supporting Americans with Autism Spectrum Disorders (“ASD”), their families, and their communities. There are a few key elements to their support, which are as follows:

  • First, President Obama and Vice President Biden support increased funding for autism research, treatment, screenings, public awareness, and support services. There must be research of the treatments for, and the causes of, ASD.
  • Second, President Obama and Vice President Biden support improving life-long services for people with ASD for treatments, interventions and services for both children and adults with ASD.
  • Third, President Obama and Vice President Biden support funding the Combating Autism Act and working with Congress, parents and ASD experts to determine how to further improve federal and state programs for ASD.
  • Fourth, President Obama and Vice President Biden support universal screening of all infants and re-screening for all two-year-olds, the age at which some conditions, including ASD, begin to appear. These screenings will be safe and secure, and available for every American that wants them. Screening is essential so that disabilities can be identified early enough for those children and families to get the supports and services they need.

Check out the new White House website at http://www.whitehouse.gov/agenda/disabilities/

 

Iowa Women's BasketBall Autism Awareness game
Iowa Women's Basketball presents Autism Awareness Day

Iowa vs. Northwestern
Sunday, Jan. 18th at 2:00 p.m.
Carver-Hawkeye Arena

Present the attached flyer at the Ticket Office to purchase tickets at the group rate of $5.
 read more ...

Petition: To The Honorable Senator Tom Harkin and meeting

As you may have already heard, we have finally been able to secure a meeting with Senator Harkin in Des Moines on Saturday, Dec. 6th.  Space and time constraints prohibit large numbers from attending, but equally important as someone's presence is a signature on this petition in support of our efforts for action on the Senator's part.

 read more ...

Channel 13 Investigation: Autism & Insurance
WHO TV out of Des Moines is doing a story about Autism and Insurance.  read more ...

Autism Conference - March 2009 - Wisconsin Dells, WI
7th Annual CESA 5 Speech-Language Institute
Kalahari Resort & Convention Center, Wisconsin Dells, Wisconsin
March 16-17, 2009

CESA 5 is excited to present two outstanding speakers on AUTISM SPECTRUM DISORDERS ...
  • Carol Gray, the internationally known speaker, consultant, author and President of the Gray Center for Social Learning and Understanding.  Carol is best known for developing Social Stories™ and has written several articles on the subject.   http://www.thegraycenter.org/store/index.cfm?fuseaction=page.display&page_id=19 
  • Taylor Crowe, an inspiring speaker and successful young adult with autism.   He learned how to write Social Stories™, which helped to reduce his autistic behaviors.        http://www.taylorcrowe.com

CESA 5 also proudly presents ...
  • Dr. Barbara J. Moore, Director of Special Youth Services in the Anaheim Union High School District.  Dr. Moore will speak on the much requested topic of RESPONSE TO INTERVENTION (RtI) for SLPs.     http://ags.pearsonassessments.com/slp/bm.asp
  • Charlie Osborne, teaches the fluency disorders course at the UW-Stevens Point and will speak on stuttering.  He has worked with children and adults who stutter for over twenty years.
Attached is the "save the date" flyer.  Speaker bios, session descriptions/abstracts, and registration form are available on the CESA 5 website:   www.cesa5.k12.wi.us/departments/sped_staffdevel.cfm

In addition to distinguished speakers, our conference features vendor exhibits, early registration, 13 ASHA Certification Maintenance Hours, 1 Viterbo graduate credit option, and many valuable door prizes.   Kalahari Resorts has proven to be an outstanding venue for the conference.  Many attendees bring their families with them to take advantage of the vast amenities offered by the hotel and the Wisconsin Dells area.  Over 400 SLPs attended our 2008 conference in March.  Please join us in 2009 to network with your peers and to enjoy these fantastic speakers!


Dallas Kerzan
Conference Coordinator, CESA 5
608-742-8814 or 800-862-3725, Ext. 246
 

New Autism Show on Oprah

Oprah will broadcast a new show about autism on Wednesday, September 24. It airs at 4:00 pm Central Time in this area. Jenny McCarthy brings us a story of "mom courage" unlike any you've ever seen. Meet a mom so extraordinary, you'll want to stand up and cheer! Plus, Jenny and her love Jim Carrey sit down together for the first time.
 
Jenny McCarthy has a new book called Mother Warriors: A Nation of Parents Healing Autism Against All Odds. In her new book, Jenny expands her message to share recovery stories from parents across the country. Mother Warriors shows how each parent fought to find her own child’s perfect “remedy of interventions” and teaches parents how to navigate safely through the many autism therapies.

Along the way, Jenny shares her own journey as an autism advocate and mother as well as the progress of her son, Evan. Emotional and genuinely practical, Mother Warriors will inspire a generation of parents with hope.

 
 

Chelation Study for Autism Called Off

Healing Power of the Horse Helps Man with Autism

Disability Waiver Info Meeting - Sept 23rd

Designer Genes Down Syndrome Group will be hosting a Disability Waiver Information meeting on Tuesday, September 23rd at 6:00 p.m. in the Conference Center, Room A at AEA 267, 3712 Cedar Heights Drive, Cedar Falls.  There are eight Medicaid Home and Community Based Services (HCBS) Waivers for the State of Iowa that provide services for people with disabilities.  Many receive respite, community living, and other services.  If you receive services for the MR Waiver, Ill & Handicap Waiver, want to know more about Consumer Choice, or one of the other waivers, this will be the meeting for you.  Refreshments will be served.  Child care will be provided in the Child Find Room of AEA 267. 

Please RSVP by
September 19th to Designer Genes, PO Box 2735, Waterloo, IA  50704; 319-939-8065; or designergenes2005@yahoo.com.   

More information about waivers can be found at http://www.ime.state.ia.us/docs/HCBSbrochure102606.pdf.

 

How to Avoid Being Bankrupt from Autism

Traveling with Kids with Autism: Some Autism-Friendly Destinations

To Infinity and Beyond: A Sparkling Survival Story

Autism Society of Iowa Fall Conference & Auction

Friday, October 3rd
8:30 am - 630 pm
Sheraton Hotel
West Des Moines, Iowa
www.autismia.org

Some of the conference speakers include doctors from the University of Iowa, Des Moines Public Schools autism strategists, Iowa Dept of Education consultants, and a teenager with autism.

Conference fees are $100 for Autism Society of Iowa (ASI) members; $50 for additional ASI family members; $125 for non-member.

For more information, please call 1-888-722-4799 or email autism50ia@aol.com.



 

Days of Our Lives - autism story line
http://www.nbc.com/Days_of_our_Lives/news/autism_release.shtml


NBC'S 'DAYS OF OUR LIVES' ADDRESSES GROWING AUTISM CRISIS AS HEAD WRITER DENA HIGLEY AND AUTISM SPEAKS COLLABORATE TO TELL PROFOUND STORY OF COUPLE WHO DISCOVER THEIR SON HAS THE DISORDER.

Dr. Lexie Carver (Renee Jones) and Commissioner Abe Carver (James Reynolds) learn their 3 year old son has autism, beginning in the June 24 episode of "Days of our Lives."

 

Food and Drug Administration Says Mercury Fillings May Harm Some

Autism, Distance from Power Plants may be Linked, Study Finds

New Web Browser for kids with ASD, Asperger's, PDD, and parents

 

Here is the link I found tonight after hearing about the browser's launch on KIMT channel 3.

 

 

Oprah - Friday, June 6th - ABC
 
 
If you missed the show about autism with Jenny McCarthy, this one will air again Friday, June 6 at 4 pm on ABC.
 

Free Bowling!
The Arc of Cedar Valley will provide free bowling sessions for students with autism, Down Syndrome, cerebral palsy and other cognitive and developmental disabilities Saturday mornings throughout June at the Maple Lanes Bowling Center, Waterloo.
 
The lessons, for ages 3-21, will start at 10 am June 7, 14, 21, and 28. A child can choose to bowl up to two games at no cost; ramps and bumpers will be provided.
 
To register a special needs student, call the Arc of the Cedar Valley at 319-232-0437.
 

Autism - Iowa Board of Education Survey

Parents:

PLEASE take the time to respond to the Iowa Board of Education with this survey by APRIL 30, 2008.

Go to www.thearcofiowa.org  to find the survey.  Scroll down to the bottom of the home page and you will see the announcement for this survey to click on....The format is easy to answer and forward.

 

Fantastic videos! Watch parents discuss joys and challenges of raising a child with autism.

10 Pieces of Advice for Parents who have Kids with Disabilities

Autism: The Musical -- view it online or on HBO

 

Autism: The Musical

http://www.hbo.com/docs/programs/autism/index.html

*Running Time:* 94 minutes
*Genre:* Documentary


Inspired by her work with her own autistic son, Elaine Hall decided to
create a musical theater program that allows autistic children to express
themselves creatively and interact socially. The result was the Miracle
Project. Countering the bleak statistics regarding autism (one out of 150
children are diagnosed in the U.S.), the California woman pledged to lead
a group of autistic kids in defying expectations by writing, rehearsing
and performing their own full-length musical. This film follows five Los
Angeles children and their families over the course of six months and
observes how this musical production gives these young performers a
comfort zone in which they can explore their creative sides.

View it online:

http://www.hbo.com/docs/programs/autism/video/?ntrack_para1=insidehbo3_text

 

April 2nd is World Autism Awareness Day

Below are resources available to download for free until April 9th.

http://www.usautism.org/resources.htm

 

 

Video about a child recovering from autism using biomedical intervention

 

Check it out!

http://www.youtube.com/watch?v=jtHvtWBv7aM

This is a short film about my son Edward who is recovering from bowel disease and autism through respectful biomedical intervention. I don't believe he will ever be off the spectrum (as he is after all my son) but I hope he will be able to live a happy and productive life and not just exist.

 

Newsweek Article - Mysteries and Complications of Autism

Check out this Newsweek article from the 3/24/08 issue:

http://www.newsweek.com/id/123474/page/1

 

Tattoos with a Purpose

If your child got lost, could he call for help or recite his name and phone number?  If not, these may help identify your child with autism:

www.tattooswithapurpose.com

 

ARI's Biomedical Survey Analysis Tool Available Online
Use ARI's database to find possible treatments for your child
 

Since 1967, the Autism Research Institute (ARI) has distributed surveys to parents to determine which treatments are most beneficial, as well as most harmful, to individuals with autism.
 
ARI recently developed an Internet program that allows parents to utilize our treatment database survey, the largest in the world, to help determine which treatments to consider trying (or possibly avoiding) for their children. In this program, a parent first rates how his/her child responded to 1-4 treatments in the past.
 
The program then searches ARI's treatment database (more than 25,000 records), summarizing how children who responded to the same treatment(s) responded to other treatments.
 
For example: if a child responded well to melatonin, the program will provide a list of additional treatments that benefited children who also responded well to melatonin.
 
There is no charge to use this program. 
 
To learn more, see:
www.BiomedicalSurveyAnalysis.com 

 

Larry King Live - Hannah Poling story: US Concedes Autism-Vaccine case

CBS News: Autism - Why the Debate Rages

Has autism hurt your marriage? Do you need marriage counseling?

This link may help. There are grants available:

http://www.nationalautismassociation.org/familyfirst.php

 

Trust Your Government or Be A Patriot and Get on Google

Government Concedes Autism-Vaccine Case in Federal Court - Now What?

Frank Varvaris Rescheduled

Frank will be coming to speak to our group on Tuesday, May 6.  Check out "Events" to see the details.

 

Watch this Video - Local Family Shares Autism Experience

 

Jodi and Brad Johnson of Waterloo were interviewed recently about autism. Their son Kyle, age 4, was shown on the front page of the Waterloo Courier's Sunday, Feb 24th newspaper. The following video shows some of their triumphs and struggles at home:

 

http://www.courierwebcasts.com/play.php?vid_id=706&file=autism.flv

Great job!

 

UNI Professors Probe Link Between Mercury and Autism

Snow Days and Autism - Throws Routine into a Tailspin

 

An essay from a mom who lost her mind when the kids stayed home from school:

http://www.wcfcourier.com/blogs/mommytalk/?p=142

 

Girl's writings opening new window on autism

Click below for the full story on this amazing girl.

 read more ...

Medicaid Waiver Info

Some information about a proposed Autism Waiver for the State of Iowa . . .

 read more ...

Autism Waiver Info (2)

More information about the proposed Autism Waiver. (This has been proposed by a group of parents.)

 read more ...

Autism Speaks - Family Services Grants

Autism Speaks has Family Service Grants.

 read more ...

Inclusion Matters Performance at Gallagher-Bluedorn Performing Arts Center - Cedar Falls -

Description:

Performance at the Gallagher-Bluedorn Performing Arts Center, UNI.  Monday, April 7th.

Tickets are $9/person.  Students are FREE.  Call 319-273-SHOW for tickets or visit www.unitix.uni.edu; for more info visit www.normemma.com today.

Norman Kunc and Emma Van der Klift, in a fast-paced and challenging presentation, use wit as well as substance, to help us see ability and disability in a far different way.

Norman and his wife Emma have spent the last 20 years working to ensure that people with disabilities are able to take their rightful place in schools, workplaces, and communities. Come and be inspired!

www.InclusionConnection.org

 

 

Help support teacher training for children with autism

Click on the link below for more information.

 read more ...

January Autism Support Group meeting minutes

Click on the link below for meeting minutes from the January 15th Support group meeting. Thanks!

 read more ...
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